Profile
Terese Knoppers
Terese holds a B.A. in Sociology and Gender Studies (McGill University) and a M.A. in Counselling Psychology (Simon Fraser University). They have an extensive background in qualitative methods and equity, diversity, and inclusion (EDI) in research and policy. They are centrally interested in research projects that help to improve healthcare access and provision, particularly for equity-seeking groups. They bring both academic and applied experience in health services to their interdisciplinary work at the CGP.
Terese is the qualitative lead at the CGP and coordinates a variety of research projects. They work for both principal investigators at the Centre and thus on a wide range of topics. Terese is presently involved in projects on improving health communication practices with intersex people, the emergence of therapeutic web portals to share clinical research data and facilitate advances in treatment, cancer patient perspectives on the internet as a source of health information and support, messaging of direct-to-consumer epigenetic companies, research governance in times of public health crisis, impacts of the lack of regulation of genetic counselling in Quebec, and the right to gender affirming care for youth.
Research areas: qualitative methods; EDI; patient perspectives; quality and equity in healthcare access and provision; critical theory; ethical, legal and social implications (ELSI) of medical developments and technologies in genetics and epigenetics; rare diseases; cancer; right to health